About Aris Pettis
My name is Aris.
I was born April 23rdof 2013, and I am the son of Jessica Pettis, a First Grade school teacher at Laketown Elementary in District 186, Springfield. I have a sister name Tressa who is 5 years older than me. I have been diagnosed with Propionic Acidemia, which is a rare genetic disease. That means my body does not break down protein and creates gases instead. This disease prevents me from eating regular foods and makes things like fevers, vomiting, and missing a meal life threatening. My condition is so severe my doctors at St. Louis Children’s Hospital in Missouri have recommended a potential life-saving, but risky, liver transplant to make my life more stable. Liver transplantation doesn’t cure PA, but it can reduce many of the more severe metabolic complications from PA and improve the quality of life.
With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. These expenses not only include the transplant surgery itself, but also post-transplant care and ongoing, life-long medication.
In Springfield, volunteers are raising funds for COTA that will directly go to offset my transplant expenses. A goal of $50,000 has been set to assist with immediate and future medical bills. With your help, this goal can be achieved. All donations are fully tax-deductible and are administered by COTA. There are no administrative costs and 100% of all money raised goes directly to uncovered transplant-related expenses.
On April 11th, I received a new, transplanted liver. Follow this event and my progress in the Blogs Section of this site.
Thank you for caring.
Aris Avery Pettis